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Genetics, Narrative, & Identity

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Co-sponsored by the minor in
Medical Humanities, Health, and Culture.
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Genetics, Identity, and the Changing Stories of Self
Writers, academics, and activists talk about challenges associated with genetic predispositions
for Huntingtons Disease, Alzheimers, heart disease, and cystic brosis. Kelly Cupo, Alice Wexler
(UCLA), Charlie Pierce, Kate Preskenis, Michael Downing (Tufts), and Isabel Stenzel Byrnes.
Moderator: Catherine Read, Ph.D., R.N., Associate Dean, Boston College Connell School of
Nursing
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Genetics, Family, and Culture: Changing Narratives, Changing Worlds
Authors, activists and academics discuss the ways genetic diagnoses for conditions such as
hereditary blindness or deafness, schizophrenia, muscular dystrophy, and Fragile x impact our
sense of family and community. Mara Faulkner (College of St. Benedicts, St. Johns University),
Christine OHagan, Clare Dunsford (Boston College), Patrick Tracey, Misha Angrist (Duke), and
Jennifer Rosner. Moderator: Lisa Sowle Cahill, J. Donald Monan Professor of Theology, Boston
College
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Rita Charon, Professor of Clinical Medicine and Director of the Program in Narrative Medicine,
Columbia University
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The Story of Illness: Where Is It Written? When? By Whom?
Rita Charon, Columbia University
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