Professional Documents
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NVFF June Minutes Final
NVFF June Minutes Final
Attending:
Vicki Raphael (co-chair), Julia Erskine (NW), Helen Daly (Eastern),
Marcella Cooper (London), Debbie Robinson (London), Jo Hough
(Inclusion East), Dave Barker (Y&H), Stephanie Chapman (East Mids),
Margaret Upham (South West), Jan Sunman (South East), Susan Kirkman
(Autism Programme Board) Patricia Charlesworth (Carers with Learning
Disabilities Network), Jodie Bradley (Carers with Learning Disabilities
Network), Gemma Ferguson (supporter), Rhianon Gale (Hft), Liz Wilson
(Dimensions), Christine Towers (Foundation for People with Learning
Disabilities)
Guests:
Karen Flood (co-chair National Forum of People with Learning
Disabilities), Pamela Gallagher (Hft), Paul Upham, David Harling (NHS
England), Maggie Graham (NHS England)
Supporting:
Lucy Virgo, Angela Ellis, Samantha Clark (Inclusion North)
Apologies:
Chris Scholl (West Mids), Stan Cooke (NE), Wendy Burt (Eastern), Viv
Cooper (Challenging Behaviour Foundation), Philippa Russell, Robina
Mallet, Cally Ward
PLEASE NOTE: Dave and Steph were only able to attend on the 23 June
as the East Midlands Employment workshop was on the 24th
ACTION
We asked for volunteers to join:
- a virtual group to look at the Working Together
agreement
- a group that might meet to look at how the
forums work well together
ACTION
Rhianon asked forum members to remember Hfts
Care Act workshop offer to the regions.
Regional Reports
The group discussed how their regional findings
link with the national work, and agreed what the
main issues at both levels are:
- Cuts, closure of ILF and the stories attached
to this were particularly highlighted
- Information
- Attitudes, values and judgements
See photo
http://bit.ly/1HofVKB
and Big Messages to the Programme Board
presentation
http://bit.ly/1CtHF4J
Mortality Review
Dr Pauline Heslop joined the meeting by Skype and
talked about the Mortality Review. She
summarised the key points in the information
sheet
http://bit.ly/1grAvEp
She is keen for families and self-advocates to be
involved in the work.
Jo asked about the deaths of young people these
are automatically reviewed under law but this
programme will work alongside this.
Pamela asked how reasonable adjustments will be
reviewed at a national level. Pauline said there is
an anticipatory duty, there are some reasonable
adjustments you would expect (e.g. easy read
information) but you would also expect individual
reasonable adjustments such as access
requirements to be included in peoples notes and
the necessary actions to be implemented.
Jodie asked if this was linked to the work of Death
by Indifference. Pauline explained that this was
part of this work.
Jodie asked if people with autism would be
included. Pauline said this is something the
programme would have to work out
Liz asked how far the programme will go back
Pauline said there will be a development period of
3 months in each area and then the work will go
live. All deaths following this date will be
included.