Silvia Petrozza is a powerhouse! Known as the Autoimmune Slayer, she has almost 1,700 Instagram followers and always seems to have her fingers in disease advocacy efforts in Canada. A mother of three, she also has her own business — impressive for a woman living with scleroderma…

Scleroderma is a rare but chronic autoimmune disease where the body overproduces collagen. This extra collagen makes the skin and other internal organs stiff and tight, which can result in many medical problems. MORE: Dr. Burt talks about hematopoietic stem cell transplantation (HSCT) and results of recent clinical trials…

In this Scleroderma Society of Canada film, we meet several scleroderma patients and rheumatologist Dr. Malette. Dr. Burt talks about hematopoietic stem cell transplantation (HSCT) and results of recent clinical trials. Find out more. The patients talk about when they were diagnosed, the symptoms they are experiencing and the…

The role of medical research is of huge importance to the scleroderma patient, and to rare disease patients in general. There is currently no cure for scleroderma, and the causative mechanisms still remain a mystery. That said, understanding the cause and cure is accelerating faster than ever before. Investment…

Here’s an amazing story from a chronic illness patient. Wyatt Wright a.k.a (Wyatt The Warrior),  a 9-year-old young man diagnosed with localized scleroderma (linear) at the age of 8. Scleroderma is a rare condition characterized by the hardening and tightening of the skin and connective tissue. In…

Well, unless you had a month away from your internet connection, you probably know that June was Scleroderma Awareness Month, with World Scleroderma Day highlighting the end of the month on the 29th. However, as we scleroderma patients know only too well, we live with scleroderma for the remaining 364…

It is finally here! Having counted down the days and months since the spring, TODAY is finally World Scleroderma Day. To read my post ‘June is Scleroderma Awareness Month,’ click here. To read my post about how the date for World Scleroderma Day was chosen, click …

Several North American advocacy and research non-profit organizations will host a virtual flash mob June 29, on World Scleroderma Day, to raise awareness for the disease. The social media event will happen on the heals of more than 100 fundraising walks, tributes and other events held during June’s Scleroderma Awareness Month. Organizations heading up…

Seeing someone wearing mittens on a warm spring day could make you wonder why — and it could be that person has scleroderma. A middle-age woman with no wrinkles can also be a tell-tale sign of scleroderma. The chances that people don’t know the symptoms or challenges of scleroderma are quite high…

In this awareness campaign from the Scleroderma Society of Canada, watch people learn how hard it is to say “Scleroderma” and how it is an even harder disease. Learn more about the disease: http://bit.ly/learnscleroderma…