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BLOOM ~ May ~ 2020 


trailblazer
'We are powerful and beautiful because of who we are, not despite it'
Stacey Park Milbern was an American icon in the disability justice world. She died last week following surgery. Stacey co-created the Disability Justice Culture Club in Oakland, Calif., a collective of disabled queer people of colour. During the pandemic, they ran a network of mutual aid for disabled, elderly and high-risk people in the area.
Young woman with tracheotomy
aroundtheworld
Author and book cover
In fairy tales, disability is never part of the happy ending
Growing up, Amanda Leduc was enthralled with Disney princesses. It was only as an adult that she questioned why none of them had a disability.
inthenews 
Bag with groceries
COVID-19 means missed meals for some families
In Britain, a Family Fund survey found that a quarter of parents of children with disabilities said they'd skipped meals in the past two weeks due to reduced income.
researchhits
Robots in masks with stay at home sign
Lockdown 'loneliness' falls heavily on teens with cerebral palsy
Everyone's on edge during the COVID-19 lockdown. But young adults with cerebral palsy face some unique pressures. That was the focus of a webinar on mental health.
growingup 
Young woman in scrubs
With Alumni Network, youth connect with adults 'who have been there'
As a teen, Luiza Lamaj wished she had an adult with a disability to mentor her. Now she plays that role on Holland Bloorview's new Alumni Network.
caretip
Help for your picky eater

Children with autism can be selective about what they'll eat. Making sure they're getting a well-balanced diet can be challenging at the best of times. Now COVID-19 has disrupted daily routines and made it more difficult to buy certain foods. Clinicians on our child development team developed some tips that are helpful for parents of kids with autism and other children who are picky in what they'll eat.
  1. Try to 'stick to your regular routine' and keep doing the good things you were doing prior to the pandemic. If you can't, remember that there will be time later to work on relearning these routines. 
  2. Aim to follow predictable mealtimes that include sitting together at the table and having your child sit in a booster seat, rather than walking around or eating on the couch. 
  3. Giving your child choices can help them gain a sense of control. Perhaps they can pick the colour of plate or cup they want to use, or which snack they will eat today. Limit the choices to options you know you have.
  4. Avoid force feeding, as this can lead to long-term problems, such as your child becoming fearful of eating.
  5. If your child loves a certain food, but you don't have it, show them on the calendar when you will get it (e.g., if you ran out of goldfish crackers, put a picture of goldfish crackers on the date you know you can get them).
  6. If your child insists on certain brands, like McDonald's chicken nuggets, and you can't get them, don't substitute a different brand and pretend it's the same. Tricking them will only lead to mistrust. Rather, tell them you can't get their favourite brand, and while this kind is different, it's worth a try.
  7. Do what works best right now to ensure your child is getting enough to eat, and don't feel guilty about it. There will be time post-pandemic to work on learning to try new foods. Now is not the time to start a new eating program!
  8. When possible, include kids in cooking and meal preparation. It exposes them to new foods and keeps them occupied. Choose age and developmentally appropriate 'safe' jobs for them to do (e.g., sorting foods, putting foods away, following a recipe, ripping lettuce, stirring batter and rolling dough).
  9. Call your child's doctor if you notice any of the following: stomach pain (non-verbal children may indicate this by hitting themselves in the abdomen); vomiting; diarrhea; pain with feeding; cough or difficulty breathing while eating; lethargy; decrease in urination; dry mouth, no tears when crying, sunken eyes; lack of interest in eating or drinking.
  10. Be strong and believe in yourself. This difficult period during COVID-19 will eventually end. In the meantime, you are doing the best you can as parents to make it through. Whenever you're concerned about your child's eating, call their physician. 

This care tip was created by Dr. Sharon Smile, Occupational Therapist Christie Raffaele, and Speech-Language Pathologist Rebecca Perlin. 

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inthenews

whatyousaid
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BLOOM is a unique knowledge-transfer vehicle that takes a families lens in unpacking for families and the general public what research is about, why it matters, and what findings mean.
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Dr. Yona Lunsky,
Director, Azrieli Adult Neurodevelopmental Centre, CAMH 
shoutouts
Black woman is medical school valedictorian
'I am woman, I am black, I am doctor'
Chika Oriuwa made waves with a spoken poem about what it was like to be the only black student in her 2016 University of Toronto medical school class. She just graduated and was named the first black woman valedictorian for the faculty.

bookshelf
Book cover
"I was diagnosed with Asperger's/autism aged five ... By age seven I knew I was very different, I had got used to the isolation, my inability to break through into the world of talking about football or Minecraft was not tolerated. Then came the bullying. Nature became so much more than an escape; it became a life-support system."
Dara McAnulty





Book cover
'Sitting Pretty is the book I needed years ago as I grappled with my sense of self and my identity as a disabled woman. I put it down while reading only long enough to collect myself each time waves of emotion crashed over me. Rebekah's spunky, self-aware wit, combined with education that never feels didactic, make this book a worthwhile and rewarding read.'
Emily Ladau, writer and disability rights activist





Book cover
'A dedicated teacher looks back on a long career working with students with autism. She presents a positive history of educators and leaders who improved our understanding of autism. There is also a great emphasis on developing a child's strengths and not becoming locked into labels.'
Temple Grandin





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Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Toronto Ontario Canada M4G 1R8
Holland Bloorview Kids Rehab Hospital, 150 Kilgour Road, Toronto, Ontario M4G1R8 Canada
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