EDW4R Maturity Index This file contains the metadata, events, and data for REDCap project "EDW4R Maturity Index". EDW4R Maturity Index 1 0 1 2 7 This is a maturity index for Enterprise Data Warehouse for Research operations. It focuses on six areas including Access and outreach, Service management, Workforce, Relationship with Enterprise IT, Data Governance and Metrics. The results will be used in a pilot study and aggregate results will be used with institutional identifiers removed. 0 ALL Record ID First name<div class="rich-text-field-label"><div style="font-size: 150%;">First name</div></div> Last name<div style="font-size:150%;">Last name</div> E-mail<div style="font-size:150%;">E-mail</div> Institution name<div style="font-size:150%;">Institution name</div> Role in Organization<div style="font-size:150%;">Role in Organization</div> -------------------------------------------<Center style="font-size:250%;">-------------------------------------------</Center> Completing the index: Select best response, regarding your institution, from your perspective. Use Not applicable for those statements that don't apply to your institution or that you are unsure what they mean. <div class="rich-text-field-label"><div style="font-size: 15pt;"><span style="color: #000000;">Completing the index: </span><span style="font-size: large; font-weight: normal;">Select best response, regarding your institution, </span><span style="font-size: large;"><strong><em><span style="font-weight: normal;">from your perspective</span></em></strong></span><span style="font-weight: normal;"><span style="font-size: large;"><strong><em>.</em></strong></span><span style="font-size: large;"> </span></span><span style="font-size: large; font-weight: normal;">Use </span><em><span style="font-size: large;">Not applicable</span></em><span style="font-size: large; font-weight: normal;"> for those statements that don't apply to your institution or that you are unsure what they mean. </span></div></div> Access and outreachsThese statements explore how access to the EDW4R is managed at your institution and efforts to communicate about your EDW4R.<div class="rich-text-field-label"><center style="font-size: 150%;">Access and outreachs</center><center style="font-size: 100%;">These statements explore how access to the EDW4R is managed at your institution and efforts to communicate about your EDW4R.</center></div> We have self-service tools for exploring a de-identified portion of the EDW4R. We have a variety of methods for enabling users to access data in our EDW4R, which take into consideration the level of data expertise of the researcher.   We require CITI or other relevant research ethics training prior to accessing our EDW4R. We have regular orientation courses in accessing data in the EDW4R.  We offer a service that establishes a population-specific data mart that is periodically updated. We are able to generate reports from our Electronic Health Record for research requests. Service ManagementThis set of statements explores management of EDW4R services. <div class="rich-text-field-label"><center style="font-size: 150%;">Service Management</center><center style="font-size: 100%;">This set of statements explores management of EDW4R services.<br /><br /></center></div> We have a standard format for submitting data requests. We have a written description of the services available to access our EDW4R. Our EDW4R services are listed as part of our enterprise IT service catalog. Our IT helpdesk knows to refer research requests for clinical data to our EDW4R team WorkforceThis set of statements explores your staffing to support EDW4R.<div class="rich-text-field-label"><center style="font-size: 150%;">Workforce</center><center style="font-size: 100%;">This set of statements explores your staffing to support EDW4R.</center></div> We have one or more staff whose duties include processing requests for data from our EDW4R. We have one or more staff whose duties include aggregating and managing the data stored in our EDW4R. We have one or more staff whose duties include project management of activities related to our EDW4R team. We have one or more staff whose duties are shared with enterprise IT. We have identified training programs as pipelines to fill open positions on our EDW4R team. Our EDW4R team includes faculty domain experts who assist with EDW4R services. EDW4R and Enterprise ITThese statements explore the relationship between EDW4R and Enterprise IT at your organization.<div class="rich-text-field-label"><center style="font-size: 150%;">EDW4R and Enterprise IT</center><center style="font-size: 100%;">These statements explore the relationship between EDW4R and Enterprise IT at your organization.</center></div> EDW4R services are listed as part of the Enterprise IT service catalog. Our EDW4R data team is integrated into our Enterprise IT organization.   Our EDW4R group works closely with the clinical data warehouse teams. The EDW4R is part of the overall Enterprise IT strategic planning process. Our CRIO (or equivalent) collaborates closely with other C-suite leaders. Data GovernanceThese statements explore data governance regarding the EDW4R at your institution.<div class="rich-text-field-label"><center style="font-size: 150%;">Data Governance</center><center style="font-size: 100%;">These statements explore data governance regarding the EDW4R at your institution.</center></div> We manage requests for access to our EDW4R with guidance from our IRB. We have a team that reviews and prioritizes data requests to the EDW4R. We have a team that defines what data from source systems goes into the EDW4R We have a team that engages with the IRB, compliance, and legal to define policies regarding requests for using data from the EDW4R.  We have a high-level committee that reviews external agreements regarding accessing data from the EDW4R.  Our governance structure considers both clinical and research data requests. MetricsThe set of statements explores metrics collected regarding EDW4R operations.<div class="rich-text-field-label"><center style="font-size: 150%;">Metrics</center><center style="font-size: 150%;"></center><center style="font-size: 100%;">The set of statements explores metrics collected regarding EDW4R operations.</center></div> We keep track of the number of research requests we receive for patient data. We track the outcomes (publications, grants...) resulting from research requests for patient data.  We track response times for research requests for patient data. We provide data quality assessments for a research network such as PCORnet or OHDSI. We assess our EDW4R using NCATS' Common Metrics. We track metrics that are used for strategic planning. ***********Scores (1-5) Note : higher is more mature<H1><Center>***********</Center></H1><Font size="4">Scores (1-5) </font><font size="2">Note : higher is more mature</font> Access and Outreach Service Management Workforce Relationship with Enterprise IT Data Governance Metrics Please provide any feedback regarding this index: Complete? Research leadership Researchers IT Leadership Informatics Leadership Other Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Strongly Disagree Disagree Neutral Agree Strongly Agree Not Applicable Incomplete Unverified Complete