Coronavirus (COVID-19) Update:
Being connected with each other is more important than ever. In all emails going forward, we'll use this section to provide updates and resources. Please bookmark our COVID-19 Resource Page, as we update it regularly with new information.
Webinars & Community Forums
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Wicked Strong. Together.
Since 1957, individuals like you have helped this organization grow from a group of volunteers meeting around kitchen tables, to a professionally staffed non-profit, dedicated to assisting and supporting families throughout New England's six states. Over the past six decades, we have overcome so many obstacles while accomplishing so much together.
The funds raised at our annual UNITE Walk and other events support our vital programs and services like our Emergency Assistance Fund. Over the last two years alone, this fund has provided more than $30,000 to families experiencing a financial hardship by helping them with non-medical expenses like utility bills, transportation, rent and food.
If you are reading this and are currently experiencing a hardship, we are are here for you. Wicked Strong. Together.
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Eligibility Requirements
- Applicant has a bleeding disorder and/or lives in the same household of the person with a bleeding disorder.
- The applicant has not applied within the last 365 days.
- The applicant is experiencing a hardship directly resulting from or directly affecting the bleeding disorder.
- The request is related to food, housing, utilities, or transportation.
How To Apply
- Identify the need (i.e. electric bill, mortgage, food, etc).
- Contact your healthcare provider.
- Ask your healthcare provider to fill out this form on our website.
- Once an application is submitted, a decision is made within 5 days.
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Regional HTC Chat Live
Join our regional Hemophilia Treatment Center network this Wednesday, April 8, at 2 PM ET, to hear from Dr. Stacy Croteau, Susan Lattimore, RN, and Eric Iglewski, LMSW. They will discuss some of the pressing issues currently impacting the bleeding disorder community.
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Access the live webinar on the Boston Hemophilia Center's Facebook page here or via Zoom here. All are invited to participate.
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Webinar: Coping With Isolation
Join us on Wednesday, April 8, at 7 PM ET, for the third event of our Webinar Wednesday Series. This presentation will focus on how people deal with isolation, like the isolation we are all facing as a result of social distancing.
Feeling isolated is not uncommon for members of the bleeding disorders community, especially during events like a bleeding episode or hospitalization. This webinar will also feature a panel of siblings and parents of children with bleeding disorders to discuss their perspective on having a sibling with a bleeding disorder.
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Last Week's Webinar: Communicating on Social Media
Last week, we hosted the second event of our Webinar Wednesday Series, titled, “Sense, Nonsense, Science: Communicating in the Era of Social Media.”
The webinar will help you understand medical facts, like information about COVID-19, during a time when social media is the source of information and news.
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Adult Education Scholarship
After introducing the John W. Cavanaugh Adult Education Scholarship to our community just one month ago, we have already had a tremendous amount of applications submitted.
This scholarship is brought to the NEHA community by John's daughter, Jane Cavanaugh Smith, to help honor her father, and to offer assistance to adults looking to further their education. Two scholarships for $1,500 will be awarded. The deadline to apply is May 1.
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Support NEHA on Amazon
When shopping online, please remember to choose us as your Amazon Smile organization. At no additional cost to you, Amazon donates a percentage of your purchase to NEHA. Use this link to take advantage of their donation program.
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Upcoming Community Events:
- Educational Webinar: Coping With Isolation - Wednesday, April 8, 7 PM ET
- 80s Trivia Night vs. NYC Hemophilia Chapter - Friday, April 10, 7 PM ET
- Dads in Action Virtual Chat - Saturday, April 11, 5 PM ET
- World Hemophilia Day Virtual Pizza Party - Friday, April 17, 6 PM
- Surprise Family Event - Saturday, April 18 at 7 PM. Details coming soon.
- Family Camp - Wednesday, June 24 - Saturday, June 27, Moultonborough, NH
- VWD Retreat - Saturday, July 18, Providence, RI
- Consumer Medical Symposium - Saturday, August 22, Rocky Hill, CT
- Unite for Bleeding Disorders Walk - Saturday, September 26, Canton, MA
See all the upcoming events HAM and CHS are hosting.
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